Good news, they said. Nothing showing. And you drove home with the same pain, plus a new problem, which is that it now has no paperwork. That appointment is a lonely one. You went in hoping for something findable, which is a strange thing to hope for, and came out with a clean result and a suspicion that somebody thinks you are imagining it. There is a name for what may be happening. It is not code for imagination. Pain was long understood as a reporting system. Damage happens, nerves report it, the brain receives the message. On that model a clear scan means no damage, and anyone still in pain has a problem somewhere other than her body. That model has been coming apart for forty years. The nervous system does not only report pain. It processes it, and processing changes. The term is central sensitization. Under sustained input, the neurons relaying pain signals become more responsive, and the threshold drops. Signals that would not have registered now arrive as pain, ordinary touch can hurt, and the pain spreads past where it started. It is measurable in laboratories, described in the literature since the early eighties, and physical. Pain specialists now use a third category. Nociceptive pain comes from tissue damage. Neuropathic pain comes from damage to nerves. The newer term, nociplastic pain, describes pain generated by altered processing without a matching lesion. It was adopted as a descriptor within the last decade, recent enough that plenty of clinicians have not caught up. Here is why your scan was clear. Imaging shows structure. It photographs bone, tissue, and places where something has torn or grown. No scan pictures how loudly your spinal cord is relaying a signal. The machine was not failing. Neither were you. It answered a different question from the one you were asking. Two cautions, because this gets misused both ways. A clear scan is not a reason to stop investigating. Sensitization can sit on top of a disease nobody has found yet, and new symptoms still deserve a fresh look. And there is no blood test for it. It is a clinical judgement, which means it can be applied carelessly by someone who has stopped listening. Used properly, it changes what gets tried. Treatments aimed at the nervous system rather than the tissue, which is a conversation for your doctor, not an instruction from a newsletter. It also changes the question you have been carrying since that appointment:
Today’s Practice Not a practice today so much as a preparation. For the next time you are in that room.
On a hard day, write the word on a card and put it in the bag you take to appointments. And to be clear about the limits of all this: new weakness, numbness, changes in bladder or bowel control, fever, or weight loss you cannot explain are not sensitization. Those need looking at promptly. Everyone’s Talking About Pain reprocessing is a category of its own online, and the work under it is more respectable than the marketing. One well designed trial of a structured therapy for chronic back pain reported a substantial number improving considerably, which is unusual here. It was one trial, and replication is still coming. What travels online is the compressed version, that the brain invented the pain and you can stop it. That step is not in the research, and eleven years in it is one more accusation. A mechanism in the nervous system is not a choice you are making. From the Old World Greek and Arabic medicine worked for centuries with mizaj, a person’s individual temperament, the balance a body is made of. It was assumed that two people meeting the same cold or the same injury would not have the same experience of it, and that treatment had to fit the person rather than the complaint. The physiology behind it has not survived. The assumption underneath it is doing better than the model that replaced it, because a system where your threshold is expected to differ from your neighbour's is a system where you are not automatically the unreliable one. Come Home Five lines for the drive home from a clear scan, whenever it was.
One act for today, if you want one. Write nociplastic on a card you keep, and bring it with you to the next appointment. The machine looked for damage and found none. You were never asking it about damage. P.S. Tomorrow, a full ritual for the hour before an appointment. What to do with the morning so you arrive as yourself. |
